Why My Blind Son is Coming Home on Sunday, part 2

Just a little more than 48 hours ago, I was told that my blind son Solomon needed to come home on Sunday. It was a decision made by the director of Camp Ramah in Canada in consultation with a number of staff members.
A few minutes ago, Solomon told us that he is coming home on Sunday. This time, it is his decision. In the past 48 hours, a number of remarkable things happened.
First of all, I’d like to reiterate the fact that for the past five seasons, Solomon has been under the care of some remarkable counselors, teachers, waterfront staff, and other professionals at Camp Ramah in Canada. He has been supported, taught, and guided with care and love.
Due to a series of unfortunate circumstances and extremely poor communication, the tremendously painful events described in part one of this post occurred earlier this week. The response to my article was for the most part supportive and helpful. I am grateful for all who commented on the blog, reposted on facebook and/or commented there, and otherwise spread the word. At the same time, my 12 year old daughter Sarah started a petition drive at Ramah to support Solomon, collecting 240 signatures. Other staff members approached the director offering to take a larger role in helping out Sol. The result was that the director experienced a complete change of heart regarding how he handled the matter. He called and expressed a sincere apology, to Solomon, to me, and to my wife. He took a second look at how staff could be assigned for the second month. He assigned one more person to be Sol’s advocate, and at my request, assigned a new parent liaison, Hillel Kurlandsky, to be Sol’s Yoetz, advisor/social worker.
Marisa and I were satisfied that the director sincerely realized that he had made a serious mistake, and took all of the necessary steps to correct it. At this point, the final decision of whether to stay for the rest of the summer was Solomon’s. Given all of the emotional upheaval that had occurred, we were not 100% sure that Solomon would still want to stay at camp. Sol and Hillel had two lengthy conversations, each more than an hour in length. I wish I could have been a fly on the wall. Hillel reported that Sol was remarkably mature and clear in his analysis of why he should stay — primarily, because so many people had worked so hard to reverse the decision of the camp — and why he should not stay. Of course, I wish Sol would have chosen to stay, but given what he’s been through, I understand why he has made the decision to come home.
I don’t know if he still wants to go back to camp next year. I don’t know if we can or should try to convince the camp to make allowances in a program designed to train counselors and other support staff, to accommodate a camper who currently does not have the ability to function as a counselor in training or a helper in most areas of camp. I’m sure that if the camp was willing and if Solomon was committed to it, we could find an area in which he could contribute meaningfully. I think we need to take a step away from questions about camp right now, and come back to it in a couple of months after the strong emotions have faded somewhat.
In the end, I want you to know that I still believe in the Camp Ramah experience, and I think I can rebuild my love for Camp Ramah in Canada. This unfortunate episode appears to be the result of a chaotic transition to new leadership; a new director, Ron Polster, who blundered quite badly. Ron, I want to thank you for acknowledging your mistakes. We are all entitled to make mistakes, as long as we learn from them and make appropriate apologies to those we harm along the way.
To those dedicated Ramah staff who I have hurt in the past 48 hours, I apologize. I am sorry for the damage I have done to the reputation of Camp Ramah in Canada by bringing this event into the light of public scrutiny. I did so only because I thought it was the only way that I could effect change.

Why My Blind Son is Returning from Camp Ramah in Canada a Month Early

For the rest of the story, see part two of this post here.

My almost-16 year old blind son, Solomon, was supposed to spend 8 weeks in the second-oldest Aidah (age group) at Camp Ramah in Canada, a Jewish camping program affiliated with the Conservative movement. My wife and I went to visit him and our 12 year old daughter this week. While there, the camp director told us that he was sending Solomon home four weeks early at the session break because “the camp is not able to accommodate Solomon’s needs for the full 8 week session.”

This is Solomon’s fifth year at camp. Sol went for one session each summer for the previous four years, but this year, called the “Magshimim” year, required campers to enroll for the full summer. Solomon was thrilled to go for both sessions. He loves camp, and for the first four summers, it appeared that Ramah loved Solomon and was completely willing to assign extra staff and arrange for some Braille materials so Sol could participate fully in the camp program. There were some rough spots. Camp staff did not always do everything they could have to ensure that Sol had the proper materials and was fully included in every activity, but we were confident that the director was committed to full inclusion, and neither we nor Solomon let the small things bother us very much.

This summer, a new director took the helm just a month before camp started. He didn’t know Solomon and we didn’t know him. Nevertheless, we assumed that the camp’s prior commitment to accessibility and inclusion would be maintained. We were wrong. Part of the Magshimim summer is a five day overnight camping trip. Although the overnight has three tracks for kids of varying levels of fitness and ability, the counselors, Rosh Aidah (unit head), Yoetzet (advisor/parent liaison), and camp director met and decided, without consulting with Solomon or with us, that they didn’t have the staff to accommodate Sol on the camping trip. Further, they also decided that they couldn’t continue to accommodate Sol for the second four weeks of camp. Ultimately, the final decision to remove Solomon from camp rested squarely on the shoulders of the new director, who decided that the camp was not willing to either hire an additional staff member or redirect a small amount of current staff time to helping with Solomon’s special needs.

Among the reason he gave for sending Solomon home early was that Sol takes too long eating his meals and showering, and requires help moving from activity to activity, which he also does very slowly. He also suggested that the Magshimim program requires moving around camp and engaging in camp activities independently, something which is nearly impossible for a blind camper with no vision to do. Note that at no time did the Yoetzet (advisor/parent liaison) bother to contact us regarding these issues. Had she asked, we could have given her some simple solutions for speeding up Sol. Also note that while it is standard procedure to include 15 year old students with special needs in discussions of their public school Individualized Educational Program, the camp held all of these discussions about Solomon without including or consulting with Solomon.

The first thing that Solomon told us when we saw him on the first day of our visit was that he wanted to return to camp next year, and that he would do anything and give up anything, including a possible trip to Israel tailored to blind students, for the opportunity to return to camp for his final summer. Our conversations with the director took place at the end of the second day of our visit, while Solomon was on a one night overnight with 8 other campers, who also had not gone on the 5 day overnight. We told the director that he had to tell Solomon why he was being sent home from camp early and why he would not be given the opportunity to return to camp at all the following year.

On the final morning of our visit, we sat in the director’s office as Solomon heard the news from the director. Solomon was brilliant. After saying that he was heartbroken at hearing such totally unexpected news, he saw through the holes in the director’s flimsy explanation of why he needed to go home and asked the same question that Marisa and I had asked the night before: “The camping trip is over – what is happening in the second four weeks that would be difficult for me to participate in?” There was no real answer to that question. The director’s explanation boiled down to a statement that the camp is not willing to devote the resources to continuing to include Solomon fully in the program. During our conversation the previous evening, I had challenged the director’s lack of commitment to inclusion – he kept using the language of “not able to fully accommodate Solomon’s needs,” and I got him to admit that the honest answer was that the camp is no longer willing to fully accommodate Solomon’s needs. Solomon knew immediately that it was a case of “not willing to,” rather than a case of “not able to.”

I should note at this point that the Camp Ramah system, consisting of nine camps, has a special needs program called “Tikvah.” Each camp specializes in a subset of special needs, such as ADHD, Autistic Spectrum Disorders, learning, emotional, and developmental disabilities, neurological impairments, and physical challenges. Solomon, while blind, does not fit into any of these categories. He attends a public college preparatory high school and with minor modifications, completes the regular curriculum.

The major part of my Jewish identity was formed at Camp Ramah in Wisconsin. I loved Camp Ramah, and because of that my children went to Ramah. This director has betrayed the values of the Jewish camp that I love. The Conservative movement is on record supporting accessibility and inclusion in our institutions. Camp Ramah in Canada is now on record stating that if you have a physical disability and need greater support than the “typical” camper, they will not devote the resources to fully include you in their camp program. You might say that this is not true – they devoted the resources to giving Sol a terrific half summer, it’s just that asking them to accommodate him for the full summer is expecting too much. To this, I say ask Solomon if being the only camper asked to leave camp early, not being able to participate in the full overnight or in the second half of the program, not being able to celebrate the final banquet with his friends, is enough. You can guess what the answer is – being half way included is not enough.

After that painful meeting, sitting in the dining hall with Solomon eating breakfast, I watched the campers sing and dance to a contemporary version of a teaching of Rabbi Akiva:

“Love your neighbor as yourself – This is the fundamental principal of Torah.”

If I didn’t laugh, I would have started crying again. The camp can sing and dance all they want about loving one’s neighbor, but until and unless they back up the words with action, Camp Ramah in Canada will be a place that Rabbi Akiva would be ashamed to be associated with.

For the rest of the story, see part two of this post here.

 

An open letter to the Jewish Federations of North America

I am sending the following letter to the leadership of my local Federation. I invite you to do the same.

In the past year, we have seen the tension in Israel between Hareidi (ultra-Orthodox) Jews and everybody else go from bad to worse. We have seen Hareidi campaigns to force women to sit at the back of the bus, signs in some neighborhoods restricting women to sidewalks on one side of the street, a campaign to remove images of women from public spaces, male IDF cadets walking out during ceremonies in which female soldiers were singing, and an eight year old girl from a religious family being harassed and spit upon while walking to school, because some Hareidi Jews didn’t think she was dressed modestly enough.

The non-Orthodox movements still do not receive support from the state, because the ministry of religion is controlled entirely by the Orthodox chief rabbinate. The government of Israel spends at least $450 million a year on Orthodox programs and institutions. There are 3000 Orthodox rabbis on the government payroll. Masorti gets, by comparison, less than $50,000 and no Masorti or Reform rabbi gets government funding. No Masorti or Reform rabbi serves as a rabbi in the IDF, though some have served in combat positions.

It is clear to the leadership of the non-Orthodox movements in Israel that the best thing for Israel and for Judaism would be a separation of religion and State, but the Reform and Masorti (and modern Orthodox) movements simply do not have enough power to move Israel in that direction. There were Masorti services for Rosh Hashanah and Yom Kippur in 64 locations this year, and there is a network of 30 Reform congregations. It is clear there is an openness and interest in non-Orthodox Judaism, but they are limited by a severe lack of funding.

Money alone will not solve this problem, but an infusion of funds into the non-Orthodox movements will help them grow and will fund their campaigns for greater freedom of religion in Israel. I call upon the Federations of North America to take 5% of the money that they would send to National Federation and send it directly to the Masorti and the Reform movement in Israel, with the goal of strengthening freedom of religion in Israel.

“Special” needs?

What is is that they say about the children in Lake Wobegon?  ”… where all the children are above average.” Of course, when every child is special then no child is special, and that’s the way it is supposed to be.  At this past weekend’s CRUSY kinnus at Beth El in Pittsburgh, every child was warmly received and brought into the program.  There were no special needs.  There was only a conscious effort to provide everything that was needed to make the program fully inclusive and accessible.
This post is my periodic plea to congregations to consider what it takes to be accessible to a blind person who happens to walk through your door on Shabbat.  It doesn’t take much.  This year, Beth El’s inclusion committee decided to purchase a set of the Braille volumes of Sim Shalom and Torah.  They actually only needed to acquire five of the nine volumes of the siddur in order to satisfy the needs of a regular Kabbalat Shabbat, Shaharit, Minha, and weekday morning.  Knowing that they were hosting the kinnus, they also purchased the volume of Torah and the haftarah for that specific Shabbat. All of this is easily available from the Jewish Braille Institute.
When my son Solomon arrived at kinnus, he was not special.  He dovened just like everybody else, with his Braille siddur.  He went up to the Bima and led Torah service.  It was no big deal.  He just participated in leading a part of the service, something that a couple dozen USY’ers did over the course of the weekend.
However, it was a big deal to his father who was standing in the back of the sanctuary with tears running down his cheeks, because at that moment his son was not special. Like thousands of youth before him, he was given the honor and privilege of participating in a Shabbat with his USY friends.
One day, Solomon might show up at your synagogue.  When he does, are you going to make him feel ‘special’ by requiring him to bring his own very bulky set of books, or are you going to make him feel like a part of the congregation by giving him a book, just as you will undoubtedly do for every other person who walks in?
For more detailed information on how to order a standard Shabbat set of Braille volumes, contact me at Rabbi@AhavasIsraelGR.org.

Welcoming Chaverim, for Developmentally Disabled Adults

Reposted from my friend and colleague Rabbi Paul Kipnes’ Blog:
rabbipaul.blogspot.com

Torah teaches, “Do not place a stumbling block before the blind.” The RiPiK, a twentieth century commentator, suggested that beyond refraining from placing blocks, we should actively remove stumbling blocks. To what might this be compared?

A story…

Even as the Director of Chaverim, a local program for developmentally disabled adults asked the question, his discomfort was evident: “How do you feel about opening your congregation to a local group for developmentally disabled adults?”

“Why wouldn’t we?” I asked.

“We’ve been to other synagogues that have opened their doors, only to feel slowly push us out, after their members became uncomfortable with the presence of our members,” he responded.

The conversation continued. “What’s the worst that might happen?” I asked.

“We have one member who can sing loudly, and sometimes off-key.” He paused, “And you might have someone read slowly, completing a communal reading after others have already finished.”

“Sounds like some of our current members.”

“However, they will usually be accompanied by the Chaverim program director or program rabbi, either of whom will help direct our members if necessary. Would you like to come by one of our events to check out the Chaverim members?”

“Why? Give me a heads up when you think there might be an issue. Make sure that in the early months you attend services only when I am leading them. That way I can witness and deal with any issues that might arise.”

So We Welcomed Chaverim
“Yes, we would love to welcome you,” I said. “Let me speak to our Board in two weeks, when I know they will openly embrace the idea and your members. We will extend to any of your members full membership at our synagogue. Two High Holy Day tickets per Chaverim member – one for the member, one for his/her driver or guest. We will make you, as Director of Chaverim, a complimentary synagogue member, so that we can give you access to our synagogue afterhours for use during your scheduled programs and classes. We ask only that your members fill out a synagogue membership form so we can get them into our system.”

“They should pay membership dues,” he said. “So that they have a sense of commitment. How much should they need to pay?”

“We won’t care. Whatever you think is appropriate. No more than $50; no less than $10. We only ask that they pay it in one lump sum, to ease the work on our bookkeeper. To make it easier, you collect the forms and information, and pass them onto my assistant, who will oversee the processing of the forms.”
“Are you sure you don’t want to meet them first?” he inquired.

“Listen, we pride ourselves on being a congregation that is open and welcoming. And we have families with developmentally disabled children and relatives. So no, I don’t need to approve them. They are Jews. Let them come home.”

Not a Mitzvah (good deed), but a Mitzvah (religious obligation)
It saddens me when I hear kvelling about how this synagogue or that is especially accessible to people with disabilities. This is no mitzvah (colloquially, a good deed); it is a mitzvah (literally, a religious obligation). It is the responsibility of every Jewish community to make Jewish life and celebration accessible to every Jew and Jewish family. We strive to remove stumbling blocks from before all Jews – including those with disabilities.

As expected, the Board discussion lasted less than five minutes. The motion to welcome Chaverim was a “no-brainer.” Our CFO and his wife volunteered to be the liaisons with the program; our Program Director was tasked with smoothing the process from the staff side. We created a new membership category called ‘Chaverim,’ though we were aware that it would be a few months before anyone would officially sign up.

The next week, we designated a few Friday nights as Shabbatot when they would officially come worship with us. As I had been informed, only a few Chaverim regulars showed up at the first services to check us out and to make sure we were welcoming. Based on guidance from the Chaverim Director, early in the service when we welcome others, I just said, “We welcome our members who are connected to Chaverim, a program for developmentally disabled adults, ages 18-88.” We did not ask them to identify themselves at that time; we let them just be Jews at services.

A Service Honoring Exceptional People
We are now close to a year into our relationship. I am told that Chaverim members have attended services regularly and appreciate NOT being singled out. They hang out at the oneg like everyone else; last week I enjoyed watching our president chatting up a few Chaverim members, just like she does ever other non-regular who shows up at services. A few read prayers in our annual Service Honoring Exceptional People (our annual “Special Needs” service); others sang along and just felt like they belonged.

All because of one 20-minute phone call, one email from the Rabbi, five minutes in a board meeting, and a few calls by the Program Director. All in the span of a month.

That, and because we took seriously the Torah teaching, “Do not put a stumbling block before the blind.” It should be that easy. Please tell us your story.